I wish I could say that I understand this roller coaster, but I don't. Last Tuesday I increased my pain meds and decreased my steroids. I was feeling more generally not well than usual, which usually calls for an increase in pain meds. By Thursday I was feeling a bit better overall and had decent days Friday and Saturday. Then at 2:30 am on Sunday the hammer fell and I woke up with really severe pain everywhere I've ever had pain. I took oxycodone every couple of hours until I could get back to sleep and then spent Sunday doing absolutely nothing except lying in the recliner watching TV. I increased my steroid dose back to the highest dose I've been on and the pain is now firmly under control. Nausea required treatment on Sunday, but none since. And I'm weak as a kitten - now having to rest while making the bed in the morning.
Getting to and from work is still OK so I'm still doing that and what I do at work isn't the least physically challenging as long as there is a handicapped spot close to wherever my meeting or office for the day is. So I'm still doing that but don't expect that to continue much beyond the end of November. Now I'm starting to think about the total disability red tape and getting myself organized for that next step in this journey.
Thanksgiving is fast approaching. I think I have the menu finalized and the turkey ordered. I've never ordered from this place before and they haven't confirmed my order yet, but a quick internet look see would indicate that that's par for the course for this local fresh turkey farm so we should be fine.
Applications are in for Hannah and Emma's next educational round and they are in the no fun waiting period. Lindsay is starting work on her applications for her next round and loving every minute of the process - not. She and Jacob were up for the weekend. Great food and good fun were had by all. This weekend Robert and I are headed for Long Island to have dinner and hopefully some bridge with my cousin and her husband.
Tomorrow is the oncologist and more chemo so think gentle thoughts for how it decides to treat me this week.