I had another miserable day yesterday that Hospice somehow managed to turn around. No pain. Nausea and abdominal distention and fullness as well as overwhelming weakness are my nemeses. I'm not doing very well with the transition from very active to almost completely inactive. I generally don't even have the energy to work on Emma's quilt most days, which makes the chances of finishing it pretty slim - also depressing. We saw both the Hospice social worker and my nurse yesterday and today there is a brand new hospital bed in the family room, ready for when I no longer feel capable of making the trip upstairs for bed.
I'm currently ensconced in my recliner with Philip's laptop, which has a new keyboard and battery so it can easily move back and forth between his room and the family room. I feel like this will cheer me up, this internet access without having to sit up in a chair.
One thing about staring impending death down is that it has inspired me to get holiday preparations taken care of much more efficiently than usual. No tree this year, which is weird, but the family room is full of greens and poinsettias and stockings and looks very festive.
Even with the equipment delivery this morning, I feel better today, so far, than yesterday. Let's just keep hoping for more of that.
Lisa
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