Just a quickie this week to say that all is well. I tried coming off the steroids and wound up feeling like a flaccid penis that was also nauseated so I'm back on the crack. I doubled my Protonix and the heartburn isn't bothering me. First volleyball scrimmage was yesterday and I made it through 2 1/2 hours thanks to the new stadium seats Robert snagged.
Having great fun helping (minimal help needed) Hannah with AP Physics.
Philip broke his finger in gym class on Tuesday so is out of gym class for a couple of weeks and SO VERY SAD ABOUT THAT. Not.
Emma's vet school applications go in this week.
Lindsay is coming out for the day tomorrow and says she has SO MUCH GRAD SCHOOL STUFF TO TALK ABOUT that it will probably drive me crazy.
Next chemo on Tuesday.
My one serious note comes after an email from my colleague who was diagnosed with stage IV cholangiocarcinoma in December. She is feeling demoralized because treatment is not producing improvement in her cancer and she knows of so many people who have been diagnosed around the same time or since and are finishing or finished treatment and being flipped over into the survivor column. That's the whole problem I've had with the survivor label. I've been alive (surviving) 18 months since diagnosis as of tomorrow. But I am not a survivor. I am still in active treatment and will remain in active treatment until I am transferred to hospice because there are no more approved, effective treatments for my cancer. I have been so blessed with these 18 months and the love and life they have contained. I just wish there had been that survivor column to even aim for.
Thank you all for all you have contributed to these 18 months.
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1 comment:
thinking positive thoughts for you. although the survivor label is not available for your diagnosis, and I understand how hard that is, you're doing great so keep it up.
mak
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